Autism and the Family in Urban India: Looking Back, Looking Forward by Shubhangi

Description: Autism and the Family in Urban India by Shubhangi Vaidya The book explores the lived reality of parenting and caring for children with autism in contemporary urban India. FORMAT Hardcover LANGUAGE English CONDITION Brand New Publisher Description The book explores the lived reality of parenting and caring for children with autism in contemporary urban India. It is based on a qualitative, ethnographic study of families of children with autism as they negotiate the tricky terrain of identifying their child s disability, obtaining a diagnosis, accessing appropriate services and their on-going efforts to come to terms with and make sense of their child s unique subjectivity and mode of being. It examines the gendered dimensions of coping and care-giving and the differential responses of mothers and fathers, siblings and grandparents and the extended family network to this complex and often extremely challenging condition. The book tackles head on the sombre question, What will happen to the child after the parents are gone ? It also critically examines the role of the state, civil society and legal and institutional frameworks in place in India and undertakes a case study of Action for Autism ; a Delhi-based NGO set upby parents of children with autism. This book also draws upon the author s own engagement with her child s disability and thus lends an authenticity born out of lived experience and in-depth understanding. It is a valuable addition to the literature in the sociology of the family and disability studies. Back Cover The book explores the lived reality of parenting and caring for children with autism in contemporary urban India. It is based on a qualitative, ethnographic study of families of children with autism as they negotiate the tricky terrain of identifying their childs disability, obtaining a diagnosis, accessing appropriate services and their on-going efforts to come to terms with and make sense of their childs unique subjectivity and mode of being. It examines the gendered dimensions of coping and care-giving and the differential responses of mothers and fathers, siblings and grandparents and the extended family network to this complex and often extremely challenging condition. The book tackles head on the sombre question, What will happen to the child after the parents are gone? It also critically examines the role of the state, civil society and legal and institutional frameworks in place in India and undertakes a case study of Action for Autism; a Delhi-based NGO set up by parents of children with autism. This book also draws upon the authors own engagement with her childs disability and thus lends an authenticity born out of lived experience and in-depth understanding. It is a valuable addition to the literature in the sociology of the family and disability studies. Author Biography Shubhangi Vaidya graduated in sociology from St. Xaviers College, Mumbai. She completed her postgraduation and research degrees at the Centre for the Study of Social Systems, Jawaharlal Nehru University, New Delhi. Shubhangi is presently a faculty member in the School of Interdisciplinary and Trans-disciplinary Studies, Indira Gandhi National Open University (IGNOU), New Delhi, where she is engaged in developing open and distance learning programmes. Her current research interests include disability studies, womens studies and labour studies. She has published both scholarly as well as general articles and book chapters and is co-author (with Anu Aneja) of a book Embodying Motherhood: Perspectives from Contemporary India (Sage-Yoda Press, 2016). Alongside her research and teaching roles, she is an advocate for the rights of persons with disabilities and their families; and is actively involved in awareness-building within the community. Table of Contents Chapter 1. Mapping the Terrain: Examining Discourses on Disability and the Family.- Chapter 2. "There is something wrong with my child": Encounter with autism.- Chapter 3. Unending Care and an Uncertain Future: The Challenges of Parenting a Child with Autism.- Chapter 4. Shrinking Circles of Support: The Urban Family in Transition.- Chapter 5. Disability, Society and State: New mobilizations and movements.- Chapter 6. Conclusion: Looking Back, Looking Forward. Long Description The book explores the lived reality of parenting and caring for children with autism in contemporary urban India. It is based on a qualitative, ethnographic study of families of children with autism as they negotiate the tricky terrain of identifying their child s disability, obtaining a diagnosis, accessing appropriate services and their on-going efforts to come to terms with and make sense of their child s unique subjectivity and mode of being. It examines the gendered dimensions of coping and care-giving and the differential responses of mothers and fathers, siblings and grandparents and the extended family network to this complex and often extremely challenging condition. The book tackles head on the sombre question, What will happen to the child after the parents are gone ? It also critically examines the role of the state, civil society and legal and institutional frameworks in place in India and undertakes a case study of Action for Autism; a Delhi-based NGO set up by parents of children with autism. This book also draws upon the author s own engagement with her child s disability and thus lends an authenticity born out of lived experience and in-depth understanding. It is a valuable addition to the literature in the sociology of the family and disability studies. " Feature First book-length study of autism and the family in India Studies issues in sociology of the family that have received scant scholarly attention Benefits parents and other stakeholders to gain a better understanding of their child, network with others and be aware of policies and programmes Details ISBN813223605X Author Shubhangi Vaidya Short Title AUTISM & THE FAMILY IN URBAN I Language English ISBN-10 813223605X ISBN-13 9788132236054 Media Book Format Hardcover Year 2016 Pages 180 Imprint Springer, India, Private Ltd Subtitle Looking Back, Looking Forward Place of Publication New Delhi Country of Publication India Edition 1st Illustrations XI, 180 p. Edited by Fiona Hunter Birth 1974 Affiliation European University Viadrina, Germany Position journalist Qualifications Ph.D. Publisher Springer, India, Private Ltd Edition Description 1st ed. 2016 Publication Date 2016-10-11 Alternative 9788132238645 DEWEY 362.27 Audience Professional & Vocational We've got this At The Nile, if you're looking for it, we've got it. With fast shipping, low prices, friendly service and well over a million items - you're bound to find what you want, at a price you'll love! TheNile_Item_ID:100553476;

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